Kate's stoma was closed today. Dr. Jacobs said he could barely see it on the inside. Her incision is covered with a small bandaid and she's eating like a champ. More later.
Kate was born with Pierre Robin Sequence. Never heard of it? Join the legions of parents who were suprised by the birth of a PRS baby. PRS is the name given to a group of 3 markers: micrognathia (small and recessed jaw) , cleft palate & glossoptosis (larger tongue). Sometimes it's part of a syndrome. Sometimes it's considered isolated. In all cases, it presents a challenge for parents that most were not at all prepared for.
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