A Piece of Kate

One family's journey with Pierre Robin Sequence

Tuesday, August 7, 2012

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Posted by Ang B at 10:56 AM 1 comment:

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Pierre Robin...what's that??

Kate was born with Pierre Robin Sequence. Never heard of it? Join the legions of parents who were suprised by the birth of a PRS baby. PRS is the name given to a group of 3 markers: micrognathia (small and recessed jaw) , cleft palate & glossoptosis (larger tongue). Sometimes it's part of a syndrome. Sometimes it's considered isolated. In all cases, it presents a challenge for parents that most were not at all prepared for.

This is our story.

Contact me

faywrayy@yahoo.com

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Favorite Sites

Cleft Lip and Palate Assoc.
Kaptured by Kate photography
Children's Hospital of Philadelphia
Aaron's Tracheostomy Page
Pierre Robin Network
Subglottic Stenosis
LTP

Kate at 2 1/2

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